CHILLY!!!
It is most definately fall here in MN. It is cold, rainy, dreary, overcast and just down right miserable!! I am just not enjoying this weather. I am enjoying however slowly watching the colors change!
OH....and you know what I am enjoying even more my daughter CRAWLING...YES CRAWLING AT 7 MONTHS!!!! She started the "army" crawl back at the beginning of September. She slowly advanced. She gave Mommy and Daddy a nice anniversary present this weekend...she was up on all fours crawling!! Seriously, that was just so awesome. I was crying! That wasn't all thought that she gave us this weekend. She started pushing herself up to sitting position all by herself too!! All I have to say is YAY for Claire!!
I haven't talked about it to much here on my blog yet but Claire has long qt type 2. She is actually the youngest person in our family with the diagnoses. We discovered long qt in our family back in 2004. My mom had an event in 2000. At that time Dr. A from Mayo was just in the early stages of genetic testing. His team contacted us in 2004 saying that yes my mom had. I have been tested, my brother and my grandmother since we all have tested positive. My brother looks to just be a carrier. My mom, me and my grandmother all had some type of event. My mom actually has a pacemaker/defrillbilator. I am on Nadolol for mine and Claire is currently on Propanolol for hers. I was monitored throughout my pregnancy, and will be with all other pregnancies that we are blessed with. If you'd like more info about long qt just google or go to www.mayo.edu. I will talk about this more in later postings or if you have questions about it please let me know! I will do my best to answer them.
I am going to blog more about this and follow the journey of long qt with Claire, since we will actually get to follow it her whole life and see how it progresses. She has a great doctor at Children's. His name is Dr. B. He is funny, awesome and just great resourceful man. I am glad we were connected by my doctor Dr. V at my heart clinic. Right now, she has an EKG every 3 months and a weight check and blood pressure/pulse check every month. I also have to monitor her vital signs at home.
That is all for now! Have a great week!
